Ovarian Cancer Canada co-developed a bilingual, anonymous, 15-question survey in partnership with a national committee of patients and caregivers and our national Patient Partners in Research team. Questions addressed survivorship challenges, quality of life, the impact and need for specific support services, and research priorities to improve long-term health outcomes and survivorship care. 

The purpose of this work was to define national priorities for ovarian cancer survivorship research and care in 2025 by gathering first-hand input on people’s lived experience as a patient or caregiver. This lived experience is known as “survivorship,” and it encompasses the physical, emotional, familial, and financial effects of cancer from diagnosis through treatment and beyond.

Key survey findings are summarized in the Report below. Results are informing Ovarian Cancer Canada’s research and advocacy priorities in the area of survivorship, and have been communicated to researchers as part of the RISE (Research Impact in Survivorship and Engagement) open funding competition.